Muscle Pain From Warfarin?

Hi. I have been taking warfarin for 4 months. Prior to my PE when landing home from a long flight I was very active running and swimming every day. Since the attack every muscle and many leg joints ache all the time. Is this a side effect from medication? Thanks.

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REPORT

The symptoms you're experiencing may be the sign of a possibly serious side effect of the medication.

Learn more Warfarin details here.

Have you consulted your doctor?

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haha sounds about right I have spoken to the doc and he said take pain killers, dont know what else I expected from him ,, will only be on warfarin for 8 more weeks ,so then maybe the pain will go ,just seems to be the lower half of thr body,,and getting spasams in the calfs,,, dont know how they decide if things are ok ,when I had the P E , was told take warfarin for 3-6 months ,I asked the doc he just said ah take for 6 months ,like ah what ever ,I guess I'm one of the lucky ones reall after reading about other guys problems on this site ,good luck to all who are suffering ,best wishes John

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imy wife hasbeen on 2.5 mg dosage of waefarin for past 20 years and no such side effect noted however some cough does occur at times

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had bilateral pulmonary embolism 6 weeks ago.Put on warfarin & five weeks ago developed severe nerve & muscle pain . Took pain killers which I don't usually take and put up with pain till I saw my doc. He said he wasn't concerned with the pain just the blood. Couldn't take pain anymore & stopped warfarin, pain disappeared in three days. Anyone had this happen to them

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hi every 1, i had multiple PE and was put on warfarin, almost straight away i developed a rash on my neck, extreme pain in my knee joints and extreme muscle pain in my arms, legs ,back and shoulders. i have been back and forth to the emergency dept thinking it was more clots develpoing just because the pain was so similar. iv been on warfarin 7 weeks and the drug as yet to stabilise my INR. i can honestly say i have never felt so ill in my life right now, i have no energy, i ache constantly, feel dizzy most of the time too. i understand that having PE is extremely draining on the body both physically and mentally it makes all kind of emotions service because it is a killer and to have been diagnosed means we are the lucky 1's but i also believe the symptoms arnt in my head they are real and i believe it is caused by taking warfarin, i am also on 8mg a day so not even a small dose. i am visiting my GP tomorrow to discuss a change of meds or i may consider just stopping meds altogether because this is a living hell.

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I've been having all the symptoms you mentioned and believe me, it's NOT in your head. I only take one drug, so I know it's warfarin and what happened to me was a fluke. I was bedridden for 3 weeks, and ended up very dehydrated with high temps and dehydration alone can cause blood clots because your body is sluggish when dehydrated. Now, my problem is, how the heck do we know we can ever stop taking this crap? My INR goes up, then it goes down, today it was 1.6 and the Dr. wants me to increase to 12 mg. 3 x per week and 10 the rest. They are going to kill me with this crap. When in hospital, they took tons of blood and even sent it off to the Mayo Clinic to look for a reason WHY I had the PE and DVT but came up with nothing, nada! So, this tells me it was probably a fluke due to being inactive for 3 weeks. I move a lot, having a cleaning biz, walk the dog a couple times a day, drink lots of water, and eat a good diet, but this warfarin is also interfering with how I used to eat, which was lots of greens and healthy stuff. The Dr.'s are only looking at one thing, to keep you medicated and your blood to not clot. They are not looking at the overall picture and even coming off this stuff. Many times, I have felt that my body was trying to get back to normal readings, but then when it goes low, they increase the meds. It's like a vicious cycle and there's still that fear deep down which never leaves you. I didn't have pain even when I had the clots, and that wasn't what sent me to the hospital. Now, I have bone pain, muscle tissue pain, noises in my head, weak spells, fatigue all the time, etc. I feel much worse now, than I did initially.

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Im so pleased its not just me and that other people are experiencing some of the effects, i spoke to my doc about changing to an alternative to warfarin but he said i have to stop looking at the pill as my enemy and start taking it with a thank god its been invented attitude as its keeping me alive! wot a load of crap!!!!! its not the doctors taking it is it, so i suppose i have no choice but to carry on and just hope i only have to be on it for 6 months :(

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It's funny that we should thank GOD this drug is here. I don't think so, because I think God doesn't want our bodies pumped full of this chemical garbage...plenty of natural things to keep the blood thin. My question to all of you is this one...HOW will a Dr. ever know if your blood levels will get back to normal if they don't work with it a bit? I mean, I believe they don't look at anything but keeping the blood from developing clots. My problem was a fluke and I had every test imaginable to check for underlying problems, as I said, and it all came back negative. Lying in bed for 3 weeks, being dehydrated, and drinking kale and spinach drinks did me in. SO, unless one has a genetic fluke in their body causing blood clots, I feel no reason for someone who had a one time occurrence to be on this stuff for lie. It is very deadly in the elderly and will cause them to hemorrhage in the brain and many times, the kidneys, such as it did with an elderly friend of mine. This drug is a "hard" drug and dangerous to all who take it. I've no felt normal since I've been on it, and all drugs cause other things to happen in your body and I am not willing to continue this stuff and wait and see what happens next. I go to see a new PC next week, and really dreading it, because most Doc's don't go out of their realm of text book thinking.

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Well, I am not sure whether this will help, bur I had a horse on Warfarin, and she showed some very strange reactions when asked to perform Slow movements required in Dressage. My Vet came to see her and agreed that she would become hyper at certain moments, as if she couldn't cope with these movements. We took her off Warfarin, and she went back to being calm, and she had no more of the strange affects.

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What good does it do to report side effects? I told the other Doctor I went to and he just brushed it off. I go see a new one Monday and expect the same from her, and if so, I will keep searching until someone listens to me, or just remove myself from this poison.

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I HAVE NO NERVE TO READ ALL THE ANSWERS SO ILL TELL U MY STORY. I HAVE BEEN TAKING SINTROM,NOT SMALL DOSES FOR ARHYTHMIA,BUT AT LEAST A PILL A DAY,SINCE MAY 1998 AND I HAVE NO SUCH SIDE EFFECT FROM IT. BUT I DID HAVE MUSCLE PAINS AND IT WAS PROBABLY CAUSED FRO A STATIN,10 MG,THAT I HAVE BEEN TAKING FOR A LONG TIME TOO. NOW I HAVE NO MORE MUSCLE PAINS. I SUGGEST U IGNORE THEM AND IF U TAKE PAIN KILLERS TAKE AS LITTLE AS POSSIBLE COS ULL RUIN YR STOMACK. AND,INSTEAD OF CONCENTRATING ON THIS POSSIBLE SIDE EFFECT OF YR BLOOD THINNER,U SHOULD LOOK CAREFULLY AT YR DOSES AND YR INR. WHICH MEANS LOOK AT WHAT U EAT,WHERE THE VITAMIN K THAT SINTROM KILLS IS,IN THE GREENS. I DONT SUGGEST U STOP EATING GREENS COS THEY ARE PRECIOUS FOR THEIR CHLOROPHILE AND VITAMIN B9,FOLIC ACID. INSTEAD,TRY TO FOLLOW YR INRs AND YR DIET,SO THAT U CAN FIND A SHEME OF HOW MUCH OF GREENS NEEDS HOW MUCH MORE OF SINTROM. FOR ME ITS AROUND A FOURTH OF A TABLET MORE ON THE DAYS I EAT A BIG GREEN SALAD. AND TAKE SINTROM IN THE EVENINGS COS U MEASURE YR INR IN THE MORNINGS,WHICH IS THE MID TIME OF 24 HOURS. AND,ONE MORE SERIOUS ISSUE. VITAMIN K THAT YR SINTROM KILLS IS NOT ONLY MAKING YR BLOOD THICKER BUT ITS NEEDED IN YR BONE FORMATION. SO U CAN EXPECT SOME OSTEOPOROSIS AFTER SOME TIME OF TAKING SINTROM. THEREFORE KEEP YR SINTROM INTAKE IE YR INR AS LOW AS POSSIBLE. DENPENDS ON WHY U TAKE IT. BUT NOT LOWER THAN 2. I SUGGEST U BUY A MEASURER OF INR,COAGU CHECK,A GERMAN APARATUS. IT COSTS ABOUT 800 EURO AND EACH MEASURING PAPER IS ANOTHER 5 OR SO EUROS. BUT ULL BE FREE FROM LABORATORIES. U CAN HAVE IT WHENEVER U GO ON A TRIP AND MEASURE YR INR JUST LIKE THE DIABETICS DO,ONLY THEIR APARATUS IS DOUBLE SMALLER THAN OURS AND CHEAPER,IF NOT EVEN GIVEN FOR FREE. EVEN IF U ARE POOR BUY IT. ULL BUY YR FREEDOM. AND THEN LEARN AS MUCH AS U CAN ON THE INTERNET ON WHAT FOODS HAVE VITAMIN K IN THEM,FOODS WITH MORE THAN OTHERS IN QUANTITY,AND THEN DONT AVOID THEM,BUT BE AWARE OF WHAT U HAVE EATEN IN THE GIVEN DAY AND THEN IN THE EVENING TAKE AN EXTRA 1/4 OF A SINTROM TABLET WHEN U HAVE EATEN MUCH GREENS. FINALLY ILL TELL U THAT KALE HAS THE MOST VITAMIN K OF ALL PLANTS. MUCH MORE. SO MAYBE DONT EAT THIS,OR IF U EAT A LOT ON A GIVEN DAY,TAKE 1/2 MORE SINTROM THAN IS YR DOSE FOR THAT DAY.AFTER KALE ALL GREENS ARE FULL OF VITAMIN K,SPINACH PARSLEY BROCOL LETTUCE ETC. AND AGAIN FINALLY,CONSIDER FINDING OUT ON THE INTERNET OR OTHEWISE,I HAVE FAILED SOFAR,WHETHER VITAMIN K2,WHICH IS EVEN BETTER FOR THE BONES THAN K1,IS KILLED BY SINTROM OR NOT. I MEAN IF WE CAN TAKE K2 AS SUPPLEMENT FOR BONES WITHOUT RUINING THE EFFECT OF SINTROM ON BLOOD THINNING THAT WE WANT. AND IF U FIND IT PLEASE LET ME KNOW ON MY EMAIL:

xxxxx@xxx {edited for privacy}

LONG LIVE SINTROM USERS!!!

KISSES XXX

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I have been on warfarin for 6 years after having a p.e 3 weeks after my first daughter was born and then 6 months later after coming off warfarin I had another one so I am now on life long. For the past 6 months my health has detoriated im moody, I ache and have really bad joint pains, I have no energy and my appetite has decreased, ihave seen many drs all who say its not side effects of warfarin I dont take anything else and im only 26 how can this just be my body i feel at deaths door and its getting me down now, I will keep fighting until they sort me out. Good luck to all suffering the same hope u all get sorted xxxx

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I am back again to ask, has anyone here ever be on Cipro or Levaquin or any of the other antibiotics in the Fluroquinolone group? I ask, because last year, I WAS on blood thinner, however put it in God's hands, got another Doctor and she agreed mine was a fluke. I stopped the med and in 5 days when I went back, my blood was normal. I never did reach the plateau they wanted me in as far as INR and I know it's because my body was fighting the drug. Anyway, I have been off this garbage since last November, but continued to feel bad with bone pain, muscle pain, burning in the tops of my feet, you name it, the symptoms were stil there. So, I got a post on FB talking about the Fluroquinolones being poison and what they are doing to people. I started investigating, requested my Medical Records and sure enough, they pumped me full of Cipro IV and by mouth. I am very angry, because this stuff is like pumping chemo into your body. I am trying to get myself back to health but it's been a hellish 15 months for me, as I never know how I am going to feel from day to day. So, it's not just blood thinner that can do you in. BEWARE of the fluroquinolones .What I thought was the blood thinner all that time, was the antibiotic.

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ill try to be short and concise. i have been on warfarin since 1998 for my metal aortic valve. and i have once,since then,had an episode of double vision that lasted maybe ten seconds. and i have osteoporosis,probably because my bones need more vitamin k1 that warfarin is killing. so instead i take vitamin k2 in hope warfarin will not kill it too and that it,the vitamin k2 will not drop my inr. i have read only in one vitamin k2 supplement that it does not interfere with my lessened by warfarin blood clotting which means that it,the vitamin k2 will help my bones without damaging the needed effecta warfarin does on my blood clotting by lessening it. i hope it is true,otherwise i am wasting my money and also taking more sintrom because i am taking the vitamin k2. but NOT k1.
so my questions are,was my diplopia,double vision,caused by warfarin,and does vitamin k2 does the same as k1,ie does warfarin kill it too,as it does withe k1. i am afraid no one can tell me either...

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I am so pleased to read everyones coments. My father is on warfarin and has been feeling exactly as everyone has described. Pains in legs, no energy and said he feels worse now than when he had his heart attack. He keeps mentioning these symptoms to the doctor and the warfarin clinic nurses but they all say they have never heard of theses symptoms How can this be when so many people just on this one forum have reported the same problems? After reading these I am going to talk to my dad, maybe we could go to the doctor together and ask could he stop taking this terrible drug and go back on asprin which he was on for many years without problems.

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Why ask the Dr. if u KNOW why he is feeling as he is? They will just tell you that it's not the drug, been there, done that. There are many natural things to thin blood and aspirin isn't the best of the best as both aspirin and warfarin have the same ingredient that will destroy the stomach lining and cause possible bleeding. Google natural blood thinners...garlic, fish oil, ginger, Vit. C, many things thin the blood while giving good health benefits.

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prescribed warfarin in august 2013 and immediately experienced extreme pain in legs - bone pain in hips, knees, shins etc and also back. Mainly in lower body. Very fatigued and dizzy at times. I have experienced a severe rash which occured when warfarin dose was too high. My GP does not recognise this drug as being the cause but it is too much of a coincidence and things are getting worse. Unable to walk far, difficulty with stairs and bath etc. My mood is certainly becoming low.

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I have all the aches and pains in the joints and shoulders, which I blamed on the beta blockers and the calcium channel blockers...but have changed these pills and still have all the aches and pains and feeling unwell..only by chance cam upon this site and good to know that it is not just me....have you come off Warfarin and gone down the natural health route...ie ginger garlic etc,...perhaps you could let me know...I do take chia seeds which I take for constipation for the warfarin and the cocodamal I take for the pain but does not work..so would be interested to know how you coped coming off Warfarin

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I do fish oil, ginger, turmeric and also a product called Cardio for Life which zaps even small blood clots. Systemic Enzymes also called Proteolytic enzymes, do amazing things too, and they thin blood to the point it has a warning label on the enzymes about mixing it with blood thinners. I thought all the time, that Warfarin was my problem but turned out, it was the CIPRO they pumped me full of and still struggling and we have a legal case out against Bayer for the damage it has caused. Just also know, that heavy, fatty, bad for you meals will cause the blood to sludge, dehydration alone can cause blood clots, so loads of pure water.

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Chris I have been on warfarin from august also for a pe and I have had tingling in both hands and feet I feel so much pain it is worse than my sickness tired of this drug

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Re: Rick (# 97)

Have been on warfarin 50yrs, now 72 yrs old. Had several PE. Major heart attack @27yrs. Have had all the side effects, inserted Greenfeild Filter in Venae Cava, never had PE since inserted. If it wasn't for warfarin i would not been living today. Difficult medication yes, most important to keep your INR well monitored.... Howzat for warfarin....Rep of SA.

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Re: rach (# 5)

I know exactly how you feel, I have been on warfarin 10 mg daily for 5 weeks and my whole body hurts especially my legs, but sometimes my chest, my arms, my stomach. I keep thinking something else is wrong, wondering if there is another blood clot or something worse, it has made me very anxiety ridden. It's good to know I'm not the only one.

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Re: Roberta (# 4)

Hi, Ive been on warfarin since July 2017 and my doctor says to keep taking medication for a year. i have also been experiencing lower leg pain. i cant walk too far then i have to stop and rest a bit before i can continue. I've decided to stop the warfarin and to monitor the leg pain.

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Re: Sue (# 6)

oh wow.....feel a lot of the same symptoms. I have been on warfarin 5 mg for almost 2 years for Afib. My muscles are weak....I have less energy.....lightheadness periodically. The only med I am on is warfarin so it has to be this med.

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Re: natalie (# 20)

Hi Natalie. I live in Sydney, Australia. I had a PE event in 1998 and the Specialist in their wisdom place me on alternative dose of 5 to 6 mgs daily. Everything I have read on this site is so relevant to my symptoms (i.e. muscle pain, nausea, dizziness, etc). In the end I became fed up over the whole thing. I decided to take matters into my hands and looked for alternatives to keep my INR levels between the desired levels of 2.0 & 3.0 with a much reduced Warfrin intake. In the last year without my Doctors/Specialist knowledge I reduced my Warfarin intake to 2mgs daily and combined it with Omega 3 X 6000mgs. My last 12 INR levels results have been constant at 2.4. Apart from the ‘Fishy Burp’ from time to time, I DO NOT experience any muscle pain or fatigue or dizziness since I covertly decided to take things into my own hands. I feel for you and all others who have and experiencing these terrible side effects of Warfarin and associated prescribed blood thinners. After all people, these ‘Professionals’ who have prescribed this medicine know that Warfarin is just another word for ‘Rat Sack’.

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Re: Roberta (# 4)

I have been on Warafin for 3 years after a stroke. Works good preventing stroke but I have sever body pain every day I think as result of Warafin.
Anyone else?

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Interesting article....I am not a doctor, but if you have a holistic physician D.O. or M.D. you might discuss:

Nattokinase and Cardiovascular Health

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You should have your blood factors checked. There are about 30 different ones. Several of which affect warfarin dosage and INR numbers. Factor 5 and 8 I know affect it.

I've been on warfarin for 4 yrs. The joint and muscle pain and stiffness is constant. I wear compression socks. The itching is INTENSE when I remove them. Lotions help but the cause bothers me.

Exgandy

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You should have your blood factors checked. There are about 30 different ones. Several of which affect warfarin dosage and INR numbers. Factor 5 and 8 I know affect it.

I've been on warfarin for 4 yrs. The joint and muscle pain and stiffness is constant. I wear compression socks. The itching is INTENSE when I remove them. Lotions help but the cause bothers me.

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After a PE many doctors send the patient to a hematologist to assure that you do not have a clotting disorder.

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