Seppe Says:
Cellcept For Multiple Sclerosis (Page 4)
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linda crockett Says:
cellcept was prescribed for me by neurologist for multiple sclerosis. Have had MS for 20 years and had symptom progression 2 years ago. Within 4 weeks I had almost complete turnaround with my MS disabilities. I could see better, was able to walk without my cane. I could swallow without choking. I speach and handwritting improved 100%. My doctor is with the Vanderbilt MS clinic. I have not been able to talk with anyone else with MS who has had such improvement. I have had no side effects. I must have CBC blood test every 6-8 weeks. Would like to hear if this is considered a break-through with other MS patients. I don't think FDA has approved cellcept for use in MS treatment.
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I too was taking Cellcept about 20 years ago along with Copaxone. I too had a remarkable turnaround. After 4 years I was taken off that combo and eventually was taking Tysabri. 5 years of tysabri then taken off because I had the JC virus. My MS is stable except for out of control pain. MS sucks!
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FredS Says:
Like many on this thread, I too am a patient at Vandy and I am on CellCept. I take it for primary progressive MS which I have been managing quite well for about 13 years. I was resistant to taking any meds for a few years but then was put on Copaxone (for 8 years) when it was thought that I had relapsing remitting MS. That diagnosis was changed in 2011 by docs at Mayo Clinic, who diagnosed me with PPMS. I have been on CellCept for about a year and, unfortunately, I am progressing – more so than I feel like I have progressed during my entire time with MS. Is there anybody out there who took CellCept for their MS and found it to be of little use. If so, was it hard to get off of? Any feedback or insight is appreciated. Thanks!
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