Prolia Side Effects (Page 5)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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I have had two shots, but will NOT take another. First one, side effects were not bad. A few weeks after the second shot, I began to have sudden, very intense dizzy spells - they come on in an instant with no warning and last up to 45 seconds or so. By the grace of God it hasn't happened while driving, or doing anything that would cause harm to myself or to someone else. I am extremely achey and have wondered if it is just arthritis, or the prolia. I had an MRI on my brain due to the dizzy spells and everything is normal. Nothing has changed in my life except for the prolia.

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Terri,
I too have had strange side effects since the Prolia injection. And while I know they can be caused by many things, the only new thing is the Prolia.
So far they haven't been debilitating but worry when I hear what happened to you!
Daphneyoung

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Can you tell me why you had 3? What exactly did you suffer?

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Its been a yeaar April 9th, 2012, after my first injection, where the doc didn't tell me of the side effects. Got over the 2nd bladder infection, developed acid reflex, have terrible problems with teeth and gums. The new bony growth is on both sides of the teeth. Also the gums are sore and swollen - take good care of my teeth but my jaw hurts and have terrible headaches, have constant itching, no ointments help, blotchy red skin, needed laser for a tear in my retina a few months ago, didnt do anything to get this. Sore all over, don't sleep well, and I am scared I might lose my teeth - there are gaps already. The hair loss that occurred last year is getting better, but still have itchy scalp. Needless to say, I don't know, if this will be in my system for a long time, psychologically, it has ruined my life and my health.
Will report this to the hospital, as I was not given any info prior to getting this injection.
I am very scared, had a few days ago a bladder exam, antibiotics for urinary infection (2nd) one - and have to use the toilet frequently. My life is a misery. Docs don't want anything to say, the ones that are giving Prolia injections.

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Hi faith, sounds like its your general immune system with the symptoms, probably the most common side effect of many strong drugs, l and others get simular following chemo, takes a time for your immunity to get back to normal. Bladder probs can have same cause, but have you even been tested for intersticial cystitus, which is a more permanent condition of the bladder, inflammation caused by immune probs, which anti b,s will not clear up or for long if bacteria is confirmed, it does cause the typical frequency and pain, and can cause severe pelvic and back pain, with general poor health tiredness etc, often undiagnosed by docs, due to not being common and ignorance about, some women go on for years with it, untill they finally get to see a urologist for cystascope, needed as it doesnt show up in samples. My friend who,s had prolia for osteo and pagetts, with severe side affects, now l6month since she had it, refused second dose, but also has ic, and is, ceoliac, also heamocromatosus, all immune probs,
l met her through also having i.c., i.bs, allergic rhinitus,
seems most people with immune problems get more than one condition. You can check out symptoms for ic on bladder adn bowel site, gives more info, might just be worth a look to see if your bladder probs are ic related. Anyway best wishes and hope things improve for you soon, been there worn the tshirt, horrendous, thankfully for me now due to dianosis and treatment, as with immune conditions usually no cure, but can be treated to improve symptoms.

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Thank u Lynn for your answer. Had this cystoscope test last friday, should have news. But its also the gums and these hard bony structures that have grown since June - and they aren't going away - I have a 1/2 hr teeth cleaning - and a good diet - the headaches, and the jaw hurts as well. I get so tired that at 7PM I am looking at the clock. I was born during WWII and had TB as a child, also developed pneumonia in 2004 in Florida, and now have bronchiactis - don't smoke nor drink. Ear has liquid in it - cat-scan that was done before it was read last year, doc said everything was OK. Seems they just don't want to deal with it - and each one thinks it has nothing to do with Prolia. Prolia rep has no answers, and can't say if the symptoms will go away. Hate the doc that gave me this injection and never told me about it - nor to take calcium pills. He considers himself a scientist, and says there is no failures, only success. Well, I don't think so much. More and more people are showing up at different docs with problems all due to Prolia. Now this product is all over the world. Money rules.

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After 2 injections and bone pain in my neck and in my arm, the latter for 3 months and I still do not have full range of motion in that arm. Do the symptoms eventually dissipate or continue on?
Thank you.
Joan

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hi faith,
Think those with immune problems to start with, many of us, are made worse with extreme drugs, prolia seems to be one, by responses, my friend jean still wonders if its still in her system going up to l8month since. Though her sysmptoms from it not as bad, and she did have a fall last friday, broke her shoulder, in pain with it, but still she prefers that to prolia side effects. So best wishes.

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I actually was supposed to get the shot today. I called the dr's asst beforehand and asked if there were side effects. She put me on hold, came back to the phone and said "No." When I got there for the shot, the nurse told me of possible side effects. All news to me. Asked to speak with dr. First. Dr called me later and said she thought it was an effective job, but she didn't want to pressure me. I need some root canals done and cavities filled. After reading this, even if there are people out there who are doing fine on the drug, I've decided it's not worth the risk at this time. Thanks for your postings. I hope these are all accurate accounts.

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That should read "drug" and not "job" above.

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Dear Sima,
Believe me, you did right, for refusing to get Prolia, no matter how good things are, its a 6 month injection into your system, and you can't get rid of it - its been over 1 year now - and my gums and teeth are very sore - bony growths, and I am afraid I may lose some teeth. Among all the other serious ailments that I have had over the year, the worst in my life.
Do not take anything by injection - its one of the worst things I have taken - and Doc never told me of the symtoms.
Good luck.

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HI Im so concern I recieve PROLIA 3 WEEKS ago and I have a terrible pain on my back,and extremities,and sciatic (sorry for my grammar) How long take all this go away? or what I can do ?

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We are all going to have to start asking more questions about this drug. Why don't the Docs and Reps know this? My Pharmacist new!!! Don't you think it is weird we all have these symtoms and they (the Docs) say there isn't any symtoms. I feel much better now 4 months out of my treatment. I will never take the drug again.

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Dear Mimi,
My symptoms lasted about 5 months. the last month I was building my strenght back up. I am really pissed off at these Doctors. I took vicodin to help with the pain, but it put me to sleep. I pretty much didn't have a life for 6 months ...
Your in my prayers, Sedona

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What symptoms have you had? How long ago did you get the injection?

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I had deep seated pain throughout my body. Bladder infections, flu like symptoms, sore throat. and ear aches
with the jaw pain.

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For how long did you have the symptoms? I had an injection of Prolia about 3 months ago. The main symptom I have had is strange tingling/dryness in my mouth as well as sores there, and tingling in my feet and fingers. Read that it is due to a calcium deficiency, but it comes and goes. I also experienced that my immune system seems compromised since I got sick right away after the shot and had 3 more issues since.
I have had bladder issues and feel bloated all the time.
I don't plan on getting another injection, but am worried about what I can do to halt the osteoporosis!

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I take Calicium and Vit D ask your doc how much to take ... Better yet ask your Pharmacist! Hugs Sed

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Well talking about side effects for Prolia I found something that is working good since 3 days Im talking about the inflamation on the stomach "Probiotics 30 billion" Thanks God I feel better at least on my stomach my recomendation; dont take more pills ,another thing Im taking is: 2 grapefruit, honey and I tbspoon grapeseed oil on the mornings and at night before bed I mix aloe vera ,cactus (nopal) hone and orange juice I believe very much pn natural stuff I didnt know where my head is when I said Yes to Prolia bad bad decision.

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I have had so many side effect I don't know where to begin. First I got chills,then flu like symptoms, ulserated sores on my tonge,I ache all over. My hands and feet are also sore that I can hardly walk or hold anything heavy. I then got acid reflux and fluid in both ears. My injection was 1 every year. I am due to have my next injection Aug. 3/12 but I certainly will not take it because I am in too much pain. I would like to know
how long does it take to feel better again. I also gained 7 pounds, I think a lot of it is fluid because I am bloated all the time. Help

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