Prolia Side Effects (Page 22)

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I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

3159 Replies (158 Pages)

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421

Hi lala I'm just out of bed but no energy cos not sleeping, I'm worn out, hair stop thinning now, Nxt prolia July but different one been given instead of it, I'm fed up with this feeling, 47yrs. & feel 80!!! How r u? Hope u well xxx

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422

I have been feeling better and especially no mouth pain. Now I don't know what to do about substituting the Prolia. I am also planning to visit a nutrionist. Keep in touch. Hope your energy comes back. God bless.

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423

I've had every treatment available in the past 20 yrs., but when it came to prolia I decided not to take a chance because of all the reviews I had read. When I told my rheumatologist what I had decided, he respected my decision and suggested that I give my body a rest of all treatments for a year. I had read about the benefits of taking a break from treatments in my research so I was comfortable with that decision. I am taking calcium only and will have a bone density in a year. Good luck everyone and pray for healthy recoveries.

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424

I have had 3 Prolia injections. I have crohn's and Ulcerative colitis. These diseases were treated by so many rounds of high steroid dosages, one of the highest, being 140mg per day for 3 months. Of course there were many other different "treatments" that didn't work either. But, little did I know that the massive amounts of steroids would cause bone density loss.........therefore, after several oral treatments to treat my bone problems, with various adverse reactions, my Dr. decided on Prolia. I have never felt so bad in my life........as if dealing with my daily bowels issues wasn't enough. My back especially, is aching constantly and well as shoulders, legs, etc. Dr. laughingly said it was GROWING PAINS..... I am a 48year old female, diagnosed with my bowel disorders at 22. REALLY. To top all this off, I had shingles about 7 years ago. Since I had the prolia injections, I have had the shingles 4 more times. I have it now and I just occurred to me to research the chances of the Prolia injection possibly being the cause of so many outbreaks. The first time I had shingles, I thought you could only get it once.........Haha..another joke on me!!! I wonder is there any drug that has benefits outweighing the side effects???????

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425

It is sad to see all of the sufferings and pain caused by Prolia and still some doctors are convinced that if is the best med in the market. I want to tell everyone that we must be our own advocate and that knowledege is power.
I still don't know what to do for my osteoporosis, but I am taking Calcium, vitamin D, loosing weight, walking and want to visit a nutritionist.
Let's keep sharing and good luck to all.
I Also have high blood pressure a fast pulse rate with Atrial fibrilation along with Crest and Raunauds so it is very important to balance all medicstion ong with thyroid problem. I am 69 and willing to fight this mess.

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426

Have you gals tried Forteo, a two year treatment, whereby you give yourself a daily injection. Forteo was the treatment that gave me the best results. Draw back, you can only use it for two year in a lifetime.

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427

Had my second shot in Oct. 2013 , its now Feb. and been sicker than ever in my life . On oxygen 24/ 7 , three wks after injection . Leg swelled up for months after injection . Waiting for class action lawsuit myself even though I swore I would NEVER be involved in one . This med has damn near killed me and still have a year to go before out of my system . Hope I live that long . 58 yrs old . DO NOT TAKE THIS DRUG PLEASE

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428

Is there a Class Action Suit going on? I would certainly want to be included just to recoup
my ER expenses plus for info to others considering Prolia!

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429

Interesting question? Don't know answer. Please share anyone with information

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430

Not that I am aware of , as of yet . I will de dead before it happens . Documenting everything for my family, if anything happens in next year, that i have left to rid this poison from my body . I think Vioxx was on the market at least 10 yrs before they pulled it for causing heart attacks .

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431

Are you positive that Prolia caused you all of these reactions? It is so scary. I have to make a decision of what to do for my osteoporosis and I am so afraid of more Prolia…..

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432

Be afraid. I can not believe the scope of adverse side effects. I had thought mine were bad enough, be so of these here are horrifying.

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433

It's been almost 9 months since I have had an injection of PROLIA and still experiencing painful sideffects of this poison remaining in my body. This is the worst of any medical treatments I've ever had in my life and I will never do it again!

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434

Had my 1st IV in June of 2013. I trusted my dr. All I can say is RESEARCH all you can and then and only then, make your decision. I have had insomnia, headaches, pain in m legs and so many other things. I will never get another IV. Years ago a drug company had to have clinical trials for a drug like 10 yrs before it was sold to patients. Not anymore. That's why you see all the commercials for drugs you may have been harmed by. Years ago you didn't see any commercials about drug companies.

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435

Sorry for the problems you're having. After issues I have recently I was wondering if you have calcium levels in the 10's. I am a nurse and never paid attention to it as my pcp never said anything about it. Turns out I have parathyroid hyperplasia. Many of your symptoms are common with it. Adults have calcium levels in the 9's not in the 10's. good luck and hope things improve.

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436

I am positive Prolia caused my problems . First one in so much pain for 4 wks I could hardly get out of bed . Should have learnt from that . Then dentist told me in order to have any dental work would need to go in oxygen chamber . That put the fear of God in me . BUT trusting my doc knew best I did second shot ....2 wks later ended up in my family docs office for swollen leg , rectal bleeding and pneumonia . NEVER had any of this previously ....had doppler for leg , no blood clots , colonoscopy for rectal bleeding , nothing found . Been on oxygen since Oct . its now Feb . Do you get the connection from what dentist told me & the fact I have been unable to come off oxygen . YES I am a smoker and this will be blamed on my smoking . In 42 years that I have been smoking NEVER had pneumonia . I was never told this would take 18 months to leave my body . My doc knows I have always had weird side effects to meds . I thought at most 6 months till the time of next injection . Only found out on here it took 18 months . Now at this point this upsets me most and going to be eating & drinking lots of things to detox this poison from me sooner .

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437

I've been on nearly all the osteoporosis meds: Fosamax, Actonel, Forteo, Reclast and Prolia, in that order. Most of them have improved my bone density, including Prolia. But the Prolia side effects were terrible (I reported them in an earlier comment in this forum) and I'm telling everyone I know not to take it. This drug is being prescribed because the medical profession doesn't have enough experience with it. We are the guinea pigs.

In my case, the side effects built up over the course of 4 Prolia injections. It took 6 months AFTER the final 6 months of treatment for the symptoms to recede. I'm thankful to be healthy again.

I urge all of you to call the FDA to report your side effects with this drug. Prolia was originally rejected by the FDA for osteoporosis treatment. In 2012 the FDA rejected "expanded use" of this drug for other conditions because of its risks. So the FDA is on record as being leery of this drug. We need to do our part to let the FDA know that its approval for osteoporosis should be reversed. Who knows if there will be a class action suit, and that would take years. The FDA needs to hear from us now.

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438

My husband had this injection on February 10, 2014. He was advised by his Dr. To take this medicine due to osteoporosis caused by prolonged use of steroids for his asthma and copd. I was concerned because I've read the side effects and what it can cause plus my husband had already had major abdominal surgery in the past. To make a long story short he was admitted into the February 11, 2014 and had to have abdominal surgery again...I told them at the hospital it began with that injection because he was fine and then boom... Of course the have denied this...

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439

I too want to know. Premerin seems to be banned since an old study indicated hormones caused increased cancer. However, the latest thinking is that this doesnt affect those who have had a early hysterectomy. I had a total hysterectomy in my early 40's. My doc advised me to stay on low-dose Premerin .025 daily for the rest of my life and not to let any physician talk me into using a combination estrogen/progesterin pill, since that is what was causing an increase in the cancer risks. My doc died,, and getting Premerin became impossible. No doc would do it. A specialist recently told me that some researchers are reconsidering the use of the hormone since the current osteo meds have fallen from grace - especially for those who had early menopause. We have been mislead. All these meds were advertised as "cures". Forteo is the newest experimental drug, the first to claim to "build" new bone, vs. "stop the shedding of old bone". Thicker bones doesn't mean "stronger" bones, and unfortunately, for Forteo, in some cases of early testing with mice(?) the bone wont stop growing when drug is stopped.....hence - bone cancer. Ugh. I am speechless to recognize how we are experimented on, how information is so hard to find. I was on Miacalcin for 10 years when suddenly studies said to "stop". Throughout those 10 years my osteoporosis kept getting worse with each scan. Then I was tested for Vitamin D. I had almost zero! Now I am on Rx for it and it is normal. Bottom line is I feel, if I had continued on the premerin,, had adequate vit D, and C, and exercised properly, I wouldnt be in this state. I am 75 years old,, have terrible IBS, had double bowel obstruction 10 yrs ago, just last month had my 3rd hospitalization for diverticulitis, and/or adhesions) my osteo is so severe they fear spinal collapse. However I do not have any pain in my back, my spine, my hips, my legs. I guess I cant see the logic of taking a drug like Prolia if there is a risk of such terrible side effects as described on this forum.

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440

You are an agent of medical industry !!!!
Don`t come hear to advertise Prolia is good !!!!

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