Muscle Pain From Warfarin? (Page 2)
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Hi. I have been taking warfarin for 4 months. Prior to my PE when landing home from a long flight I was very active running and swimming every day. Since the attack every muscle and many leg joints ache all the time. Is this a side effect from medication? Thanks.

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87

From forum suggestion I read amongstabout Nattokinase which is natural not medical and is a anticoagulant amongst other things. I have awful pain in my bones so having started this today I am hopeful of good results and I will not take warfarin again. Look it up on google. Then make your choice which I hope will help.

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86

I truly sympathsise with all you warfarin pain folk I am just the same horrid pain in my bones mostly back and upper body. I read on one of the forums that they replaced warfarin with Nattokinase which is not a drug and it is said to be an coagulant amongst other things. I have started it today and I am really hopeful. Warfarin is poison for me so took last dose yesterday. Look it up on google, hope it will be helpful. Good luck.

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85

I have been on both Xarelto & Eliquis and they both give me sever joint pain. I am just glad to know that someone else has experienced this too. My doctor says he doesn't the the meds could cause it, but I know what I have experienced and when I quit taking them, the pain goes away. I have a hereditary blood clot disorder, so must take something the rest of my life. I have switched to aspirin on my own and quit taking the blood thinners. I am scared it won't be enough, but I just can't take the pain.

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84

I am also trying Vitamin D. People say that is suppose to help the bones in your body. I have to try it. I just started yesterday and I am sure it will take a few days for it to start working. Will see what happens.

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83

Doctors don't want to believe that people have pain from the Warfarin. I even asked my pharmacist about it, and they said they have never heard of that. They told me I should follow-up with my primary doctor. I am off Warfarin for a couple of weeks now. Still have pain in my legs, but I am going in for some injections in my hip bursas and hopefully it will all go away.

Will see what happens after April 5th with those injections.

Praying for all who are having problems being on Warfarin. I don't think there is a med for PE that doesn't have bad side effects.

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82

Eight years ago I also had a blood clot with multiple PE's and was told that I should be on blood thinners for life. Since I could not take Warfrin due to the severe muscle pain throughout my body I was put on Lovenox shots. Since my doctor did not like the idea of me being on the shots for life he sent me to Mayo Clinic for tests to see what they could determine. After tests I was allowed to go off my blood thinners and I have done just fine. I do watch it when I am sitting for a period of time (such as traveling in a car) and also when I flying.

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81

I am doing okay. Hopefully I will not get PE again. I have a feeling that some of my pain is from the bursa's near the hips, but I cannot be sure. Going in for an injection in both and will see if that helps. My legs have been a little swellon as well, but getting better.

I have had injections before and it really helps. I am hoping this may not be from the Warfarin, but I am going to ask my doctor also. I cannot even walk up the steps like a normal person ... one step at a time.

I wish all the best to everyone who is on meds due to PE.

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80

Well there you have it! Warfarin causes severe pain. Now we need to find a solution to an alternative blood thinner.

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79

I have been on Warfarin for almost a year. I have been experiencing severe pain all over especially in my legs. I just have another day or two to finish these meds and then I am done. I do, however, have to take an 81mg baby aspirin a day after that. When I fly on the plane for 3-4 hours, I have to do a Lovenox shot before I go and when I come back. Same for long trips in a car if no stopping.

I ended up with PE two days after my husband came home from the hospital from having a triple bypass. This was all in March 2015.

I also take 2 extra strength tylenol tablets in the morning and at night so I can try to get rid of the pain, but that doesn't always help either. So I will be glad to get off the Warfarin and hope to never have to go on it again.

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78

Are u ok? Have u had INR checked. Coumadin is killing me. This is second time. In 8 years. I received allergy with xaelto Eloquis I received PE's again. I hate Coumadin. 63 15 grand kids. But not living

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77

Hi, have been reading all your comments so would like to tell you my story to all.
in 2014 I had a multiple pulmonary embolism (PE) and now on warfarin for life. whilst in hospital I developed back pain but thought it was due to the spasm pains I had before being rush to A@E, but have been taking warfarin for two years and back pain has got worse, Dr have tested me for osteoarthritis, rheumatoid arthritis, had many fasting full blood test for liver, kidney thyroid all came back negative. My Dr won't believe that its the warfarin that's causing it, i feel sure there wrong, I ask if I could have a break to see if the pain goes away but they say I would be in too much risk as I nearly died with it... surely I have a choice?

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76

I thank everyone who wrote here about Warfarin and their experiences with it.
I, too, thought my pain and aching was a result of my atrial fibrillation episode(the
after affects). I thought I was alone in my pain and discomfort. I currently have a
new PCP. After blood work, I will see him and hopefully remedy this by removing
myself from this awful drug. I have felt desperate and limited in activity.

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75

Hi I have been on warfarin from November 2013. I had two DVT attacks and now Antiphospholipid Antibody Syndrome. I have been suffering with leg pain since the attacks and in my annual visit last week to my physician was advised that because I ignored the clots and got to the hospital too late the vein walls have been forever damaged. I live off pain killers. I have just also been told to Aspavor so don't know how that will impact further. I have however started with indoor cycling with a spinner as it less impact on the legs. My diet is minimal since been in hospital so why I got cholesterol it is unknown as I eat little and generally healthy food. I have picked up weight since been on warfarin. Suggest you start with legs stretch and low impact exercise and I use venavine or antistax (I am in South Africa) for the leg pains as I tired of medication. Good luck and if you do have the same feeling of a DVT do not waste time go to hospital and every minute counts.

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74

Doctors want to tell you it is not a side effect from taking Warfarin. But as you can see from the many posts on this site, numerous people have experienced this kind of pain while taking this drug including me. My doctor had me on Xarelto after a 2nd blood clot and I did not have the extreme pain but my muscles did hurt.

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73

im with you, we sound identical symptoms.

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72

Get your blood factors checked, there are 30? factors in blood, many effect warfarin and the dosage. My blood had to be analyzed at MAYO clinic to discover all the factors I have.
at least your INR may stabilize on a smaller dose.

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71

I had bilateral PE as well since 7/2013. Ive been on a split dose of 17 mg per week since. I had slight joint pain before PE.
I have asked doc about pain several times and was told warfarin doesnt cause that symptom.
The pain ive been experiencing over the past year has been unbelievable.
Blood tests revealed vitamin D,B12 deficiencies.
Mega doses and daily suppliments helps some. I used to have tiny pain explosions throughout extremities, diabetic type pain. Im not diabetic, or over weight, although since being hospitalized in 2013 with PE I lost nearly 30 lbs, I have gained about 32lbs back. Most Ive weighed ever.
I am now suffering extreme muscle weakness, withering, joint pain from shoulders to ankles. Full length of a muscle, eg. quads are sore to the touch just under the skin. It affects my will and ability to walk or want to do much, hence the weight gain.
My ability to focus or care to focus has been affected.
Im 58 and have gone most of my life hardly taking asparin for pain, and only meds when sick. I know my body,
I listen when it tells me its hurt. Stupid clot felt like a hernia, so I blew it off. Damn near killed me.
The constant pain is unacceptable. Doc has prescribed pain med I take the least I can and sparingly, as it can make me a bit tired. I was told I would be on warfarin 6-12 months, then told probably for life.. My quality of life is nearly gone as, I barely feel like getting up for work everyday.

Paul

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70

Yes it is a side effect of warfarin. I had muscle pain. Cognitive problems. Cold! Tired all the time. And more. I had to quit. Against doctors orders. And I really need the med. Female. 59 yo.

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69

I need be on warfarin. I have had 2 PE & 1 DVT in 23 years. I can't use warfarin because of the many side effects. PAIN all over. Especially my toes. Cognitive problems, I can't think. I want to sleep all the time. Thinning hair. Anal bleeding. COLD all the time. There's more. I had no life. My doctor also LIED to me and said warfarin does not cause this. Why do they do that? Of course it does. Goodness we use it to kill rats and mice. I quit. I know it's not a good solution but I need to work, pay the bills, and I need to think to do that.

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68

I was put on warafin after a total knee replacement while I was in the hospital and rehap I was on a lot of pain meds so I didn't feel a lot of pain that I felt when I came home and wasn't on that much pain meds but was still on the warafin I tell you my back was killing me I didn't know where to put myself I stopped taking the warafin for a couple of days to see if would help with the backache going away well sure enough had no more pain in the back I went back on the warafin was afraid of blood clots and guess what the pain in the back came back I called the dr. and he didn't think it was a side effect he never heard of it but he took me off them and my back was fine. So talk to your Dr.

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