Eylea Injection

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Has anyone experienced loss of smell and taste since getting injections?

7 Replies

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1

What did your retinal specialist say about the cause of loss of smell and taste?

Were you on Lucentis or Avastin before the start of Eylea?

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2

I haven't been able to find any information that lists such symptoms as being known side effects of this medication, but it's very difficult to know how any drug will affect any given person that takes it.

Have you contacted your doctor about it?

Learn more Eylea details here.

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3

I have been having inj's. for amd since Oct 2010. First Lucentic for about a year, then Avastin. I have now had about 26 inj's. of eyelia. I lost my sense of smell in 2015 and saw ent specialists. I had a CT scan and an MRI scan but nothing found. The specialist put it down to a viral infection and said my sense of smell would probably not retur. I mentioned the inj's. and asked if there could be a possible connection but was told to ask the eye specialist. I asked the eye specialist at my next appointment but they were unaware of any possible link. Recently as I get near the time for my next inj. I find that I can smell a few things and still wonder if all the drugs I have had put in my eye are affecting my sense of smell.

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4

I am not surprised. I took shots for 1 1/2 years in my left eye for retinal venous occlusion or cystoid macular edema or vitreomacular traction syndrome. The day after the last shot (April 12, 2017) I had diarrhea in the morning, and brief headaches several times. I wondered if I developed a hypersensitivity or had small Thromboembolic Events - mini-strokes. One week after a shot, I had total blurred vision (meaning both eyes) for 5 minutes. I am glad that did not happen while driving. My eye doctor saw me two days later. He said the retina looked fine, and I should see my general practitioner. I did not do that. I stopped getting shots. Since then (4 months), I have not had any blurred vision, my short term memory has improved much, and confusion is much less often. So, I think this drug has a nasty neurological impact. I am a senior engineer and a Professional Engineer. My brain is more important than my left eye. By the way, I also had an eye refraction: right eye is 20/30 and left eye is 20/40 without glasses. My wife almost finished her 4th year of College of Pharmacy (5 year program), before escaping a war. She warns me often of the high risk of drug adverse reactions (side effects). Because this drug is early, it's adverse reactions are not well known. Buyer Beware. My original eye issue was/is due to a cardiovascular issue, meaning I need to drink water and exercise. I am now up to 800 yards swimming and maximum heart beat rate up to 114 beats per minute. I was a competitive swimmer in high school.

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5

Re: Mike the engineer (# 4) Expand Referenced Message

I am still doing well without the shots, maybe even a little better, regarding memory and less confusion.

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6

Re: Mike the engineer (# 5) Expand Referenced Message

I'm still doing well. My wife's mother is having serious adverse reactions. So, we all need to aggressively protect ourselves from the drug industry.

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7

I've been a long term recipient of Eylea injections. After my most recent injection I started having severely blurred vision. Now I'm on Prednisolone and I'm not the only patient with an infection from this dose of Eylea.

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