Ampyra Headaches
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I have been taking Ampyra for 4 days. I have noticed a decrease in fatigue but headaches daily. The question is will they eventually go away on their own, or do I skip a day and see if they stop or quit til I see the doc ?
I started taking Ampyra yesterday 8-31-2016. I've already noticed two common side effects: blurred vision and headaches. I'm hoping this is temporary. I've heard great things about this medication, and wouldn't want to give up on it so soon. Anyone's input would be great. :-)
Hi, I took 3 days dosages and felt absolutely horrible- balance was way off (had very little balance issues prior). The last dose gave me a huge anxiety attack.
I immediately stopped taking, now it feels like I am in a relapse . I hope to God I return to what I was before. I had very few issues and wish I never took it.
Hi, feel so blessed when I read other's experiences. I am onto my 2nd month of this. It has helped walking, no headaches. I have had a bad cold (lots of others had this too) and experienced a hives breakout in month 2 which I questioned the gp about and they seemed to think was not due to the drug. So expensive as it is I would recommend this.
I'm trying to find the cause od MS?
question for everyone?
have you ever lived with any kind of fear?
fear of somebody for example ??
hi the instructions say to keep to 12 hours apart (so i get very nervous about keeping that strict) - i was also told that it works better on an empty stomach, so to take early in the morning and before dinner. I've just started and have found it helped and then today not so good.
hi the instructions say to keep to 12 hours apart (so i get very nerouse about keeping that stict) - i was also told that it works better on an empty stomach, so to take early in the morning and before dinner. I've just started and have found it helped and then today not so good.
What is the max time ampyra should taken to treat walking and balance im ms ?
is it 3 month, 6month or forever
I'm trying to find the cause od this dides
so have you ever lived with the fear of phycical violane ??
Hi there,
you are not supposed to skip a day, so you should continue with it and see if the headaches subside; if they do not go away, I would recommend your speaking with your neurologist. By the way, I'm writing from Canada, and it's called FAMPYRA here. Good luck!H
I took my first dose of Ampyra at 6pm and could not go to sleep at all that night, got up at 6am and took second dose, felt dizzy, headach and body aches like I had the flu. very disappointed. wanted this medicine to help me walk better as I have numbness and weakness in my right leg and foot. did not take any Ampyra today because I could not miss work. How am I supposed to walk better when I feel like I cannot get off of the couch from the side affects?
I have been on Ampyra for about 5 weeks and notice an improvement in reducing fatigue. The first three weeks on it I had incredible headaches in the morning, but they went away.
Do NOT take anything with acetominophen including the previously named over-the-counter headache drugs above. If you look up the drug interactions with Ampyra in the Physician's Desk Reference, acetominophen can cause seizures in combination with Ampyra. It has this reaction with other drugs, so look it up! Do not assume your neurologist knows this. And it isn't clearly listed in the consumer information from the manufacturer.
Hi, been on it a year the only things is weakness an the worset back siatica type nerve pain drove me to morphine an it dosent help i stopped it 2 days ago nerve pain almost gone, pain so bad i was thinking bad thouughts if you know what i mean,will never take again. Rhonda
Thank you 24char. I also have chronic back pain. I have been on Ampyra since the summer. I stopped because I had major surgery then rehab because of complications. I see my doc in about 10 days. I am so confused about whether to take it or not but you have encouraged me. I am 53 was diagnosed in '95 and took Avonex for 13 years. I finally quite because it was so hard on me and getting harder. My brother and nephew have MS. My brother is on Copaxone but having trouble with it after several years. My nephew is on the new oral med and my brother is trying to get on it too. I will keep people posted about that. I am confused about the pain I am having everywhere. Does anyone else experience this? We are getting a new MS facility in OKC - I will also keep people updated on it. Dr. Gabriel Pardo is the founder. Try goggling it - I have high hopes. I will see it first hand 3/24. Let's keep on blogging! Together we can! I also have a Bioness L300 for foot drop - it is fantastic! I still use a walker but it is great!
I was surprised to hear of all that have had headaches when starting the Amprya. I have had no bad side effects from it.. I usually have problems, could not use Avonex or Rebif. I am on Copaxone but only inject half as they make me so sick. I was concerned about the possible back pain as I have a chronic back injury which causes pain, but it has not increased. I attended a seminar last month and learned a lot about how the drug works by filling in the "gaps" in our spinal cord that have been damaged. That may be the cause of some of the pain at the beginning. I don't see how stopping and restarting could make any difference, seems to me that it would just set you back. It has been a wonder drug for me, I plan on walking a marathon this summer with my grand kids and daughter, something I never could have done before. I was dx'd in '96. I started Amprya in June '10. All these drugs work differently for us, maybe due to where the damage is? Good luck to us all.
Hi HSS, though I am not (yet) on Ampyra, I went to a seminar Wed, 3/8/11, given by Dr. Tullman, an MS neuro. at Columbia in NYC. He advised that if we do not see any improvement w/in 5 weeks, then it is unlikely that we will, and to stop taking it. What does your doctor say? Good Luck on your healing journey!
I have SPMS & have been on Ampyra for 2 weeks. It's amazing. I usually use a scooter & could only walk about 2 city blocks before my leg died, Now, it's seriously easier to walk.
My question is for anyone with PPMS: How did you get your MD to prescribe this? I want to recommend a friend with longstanding PPMS get her doctor to prescribe it, but am afraid she'll be turned down bc she's wheelchair-bound. Thanks, Arlene
I wish we could all get answers but I think MS is so unpredictable that we make assumptions that are based on ???? I attribute things to the heat, the cold, the barometric pressure etc. when there really is no rhyme or reason. Stress and illness have been huge factors for me right now. I am also distressed that when we reach a certain point the drs. just randomly dismiss everything wrong with us. I swear I could walk into an ER with blood spurting from my eyes and a doc would nonchalantly remark - oh it's your MS again!
Will u be staying with Avonex? despite of setbacks? I wonder when will a doctor consider changing treatment plan? I was dx 97. started betaseron 2000-2001 then nothing until 2008, resumed betaseron and set backs started. Would that be the unwelcomed progression of MS? Right now, Iam thankful of Ampyra. It's definitely helping eventhough it's not perfect. Any inputs are welcome. thank you.
I notice change for the better in my walking (on day 2). I was walking so well for about 5 -6 weeks and then the meds seemed to stop working. I am still taking Ampyra and avonex and I am not walking well at all. I did try stopping Ampyra for a week and restarting, but it didn't work well like when I first staryed taking it.
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